worst case scenario?
Glamorgan Holiday Hotel here public diary here Family page hidden page
2245 2 Sept 2-15 Update 3 Sept 1600 Case 1- waterproof pants here
Both exhausted.
Letters to GP - account written on 1 9 2015
GP Comment in this text
Typed letter to surgery 24 Aug. Obviously, links have been added since. GP unaware of the links.
Teresa and I need your attention please. As this is likely to be one of numerous requests on your return, my needs are less urgent. Teresa has been in fair health considering the sheer extent of her ailments.
For several months until early July, she was able to be on parade c 1000. This has regressed to 1330 and worse. A main reason is that she now (possibly) suffers from urinary hesitancy. There seems to be more stops than starts. She is generally occupied for an hour including once a night (sometimes twice). No sign of constipation. She drinks plenty of water. GP advised stopping one her pills over several days. Seems to be working.
The dementia dimension seems fairly stable with only occasional lapses of memory and loss of FTD word-retrieval. Hereford Memory Service has recently conducted an assessment. here
However, I am worried about her weight. She seems more frail. You and I spoke in March and June re dietician advice viz Laura Samuels. Still nothing You have masses to do. We leave for a second visit to a disability hotel on Weds 2 Sept returning Thurs 10. It’s probably able to provide the correct scales. If not done before we return, can we please repeat the Ross hospital venture of weighing her?
GP advised he was to follow this up yet again. Yes - weigh Teresa at the hotel.
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Hand-written compliment slip to GP on 27 Aug
Thank you for your call yesterday. Will investigate Teresa's weight at the hotel. It has sling-hoists. Should Teresa use them with her hip socket problem.
Paracetamol is being taken up to twelve per day. I can't always keep track.
Max 8 per day - no mention of pain prob.
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Teresa complained her level was 9 yet again on 30 Sept. I decided enough was enough. Could see another canalboat episode here arising at the hotel. Phoned 111 and a Dr Khan was most concerned about the level of paracetamol being taken alongside Codrydamol, itself containing more Para. Said he would send another Dr.
A Dr Singh came at 1000 and was very professional. I took Teresa to A&E and we arrived at 1130. A gruelling time for Teresa but no liver damage. The Codrydamol was replaced by liquid morphine - Oramorph.
I have had concern over the Para equation since June but have had complete faith in Dr L. I can't tell all the story and have sent the following by email.
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Dear Dr L
Teresa complained her level was 9 yet again on 30 Sept. Phoned 111 and a Dr Khan said he would send another Dr.
A Dr Singh came at 1000. I took Teresa to A&E and we arrived at 1130. A gruelling time for Teresa but no liver damage. The Codrydamol was replaced by liquid morphine - 100 ml of Oramorph 10mg/5ml - 2.5 ml 4 times a day. With the advice to use it on demand, I gave Teresa 1.5 ml at bedtime the same day - Sunday.
Today, Bank Holiday Monday at 1700, Teresa has not asked for the liquid. We will see how that goes.
Your advice re the Mirtazapine may well be working. The urinary hesitancy is less hesitant and of shorter duration.
Teresa will take time to adjust to all this but a journey to the Porthcawl disability hotel on Wednesday is on her coping agenda. She had been coping quite well with her own pill management and it is by far less certain that she was taking as many as twelve Paras a day.
In the context of the Oramorph possibly being given less than max needed per day, we don't need to ask for a crate on the doorstep. I will catch up after our return on 9 or 10 Sept.
Thanks as ever.
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PS 01 09 2015
Regret prev email premature.
Gave Teresa Oramorph set at 2 on the syringe. Needed ditto at 0500.
Assuming Oramorph to be the correct med (4 x 2.5/day max) can we have another bottle please before departure?
Benjamins programmed to bring dossets on Weds morning.
Apols
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He wrote back saying will prescribe large bottle. Large = huge!
Am concerned up to a point. A&E Oramorph - the correct med (4 x 2.5/day max)
Dr L said 5ml doses no limit re number per day as long as 2 hours apart and be aware re constipation risk.
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Liz not much help. Arrived 0925. I asked if this is the new time. Said she was working late elsewhere - hands on hips.
Mother in a daze all day. Very very slow. We left at 1630. Rest of story here.
Page began with
2245 2 Sept 2-15 Both exhausted.
Mother even more in a daze. Spilled water for pills down her neck and on bed. Had to change her top and put towel under her.
See time I got to bed on the email link. BUT "The TalkTalk website is unavailable right now."
pagetop here glamfam page here glam - glamorgan hotel fam - family
Hereford Memory Service has recently conducted an assessment. here
Codrydamol, is underlined as wrong so I clicked to see what it should be - mollycoddle!