Life-limiting/threatening illnesses - research
From a doctoral thesis
This area of research has been confounded by problems of definition and the semantics of
whether conditions are life-threatening or life-limiting. The latest contribution proposed
is that a life-threatening illness is one where there is a possibility that a medical
intervention might prove successful (even if the treatment poses a threat to life).
LLCs are those for which there is currently no available cure and the condition is likely to lead
to the child dying prematurely. In practice, the distinction is often arbitrary since an
individual child may oscillate between the two definitions especially during acute
exacerbations of the illness, for example in children with cystic fibrosis.
For the purpose of this thesis a LLC is defined as:
Any illness or condition developed in childhood whereby the
child is likely to die before adulthood or with a limited
expectation of life thereafter. Alternatively, any condition
developed in childhood that, without intervention, will cause a
child to die prematurely (NHS Executive 1998:5).
p 14 here
palliative care mentioned 62 times in the document
In the Biblio but not found in the above text:
Nyatanga, B. (2005) Adapting to death, dying and bereavement. In Faull, C., Carter, Y. &
Daniels, L. (Eds) (2005) Handbook of palliative care. London: Blackwell. Google pdf p98
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Community children’s nursing services in the 21st century
Every Child Matters provides a major opportunity for developing services that ensure the health and social care needs of children with complex care needs are met, as Joan Myers explains