My experience
This
page serves to support text on other pages.
1 Talking
1.1 Other carers
1.1.1 On an individual basis by face to face discussion, by phone
1.1.2 Within carer support groups
1.1.3 At central (e.g. within county etc) meetings
1.1.4 More than talking here
1.2 Carees
1.2.1 At combined carer/caree events - example here
2 Writing and receiving email
2.1 Other carers
2.2 Carer support group leaders
2.3 Those involved in carer support provision
2.4 Other professionals such as medics, district nurses, dieticians
2.5 Other professionals involved in law, finance etc
3 Reading
3.1 Newspapers here
3.2 Magazines
3.3 Books - general
3.4 Books - specialised here
3.5 Journals
3.6 The above and more via the Internet
4 Other media
4.1 Radio including here. Someone ought to recreate such provision.
4.2 TV
5 Common sense
5.1 We may all think we have it. Does it need definition? Don't know? Take your pick.
5.2 Is common sense different for men and women? more
6 History
The listing system now changes. It is easier to add items when they arise.
- Carer role started in 2000. Chemotherapy component affected my wife's feet
- Moved house in 2004
- Wife dependence on wheelchair increased markedly in 2005
- Tried one purchase of pavement scooter 2005
- Bought another in 2008. Used about five times in normal sense but (since 2014) see here.
- Ability to use either scooter came to an end in 2008
- Younger daughter with chronic ailments started a series of major operations. Have been a secondary carer to her since.
- Wife's range of impairments markedly increased in 2012
- Seven-week, one afternoon per week carer course undertaken in early 2013
- First contact with local carer support group - monthly - in September 2013 - here
- 2013 - the need for all wife's food to be made into puree
- The role of meal-preparer is extended
- That led to investigation of prepared meals here and here. OK at first but now limited use. You can read the pages but not the reader who accesses the site normally. The company is not recommended for those who need special meals involving purees and blended food.
- This website started - mid September 2013.
- 18 May 2015 - see update 14 May of that year here.
- 100% dependent on powered chair 2014
- Dementia confirmed 2014
- Later than that - see the updates page - my wife's health is subject to change.