An exploration of the UK unpaid carer's world

  

MEETINGDEM Overview        Introduction here     Nav page here     

            

New satellite website - 5 June here                              All core pages in this series are hidden pages

                

Contents 

        Preamble

  1. A compact and sign-posting approach
  2. Background
  3. The present
  4. Procedure and criteria relating to setting up a DMC
  5. The future


Preamble

  • A  The series promotes Dementia Meeting Centres based on the success of 125 DMCs in Holland.  source  There are others elsewhere beyond two in the UK
  • B  The series results from the website author's strong belief in the continuity of  the too-few UK DMCs and            the creation of more.

  • C  The series results from the Meetingdem website's absence* of text in one place aimed at the continuity of           two existing UK DMCs and the creation of more.    *That is to say, nothing has been found.

  • D  It is important to emphasise that this promotion includes finding the finance for the long-term operation of        new DMCs.  Work to be done.

  • E  Core pages in this series are hidden pages  pending feedback - more  - italics to be removed after feedback.

  • F  Public pages elsewhere on this website are used.

  • G  Video presentations some long  have been placed on the Links page, which, for some readers, may be                       regarded as less urgent.

  • H  That said, the first video is the most important for time-pressed viewers.

         It demonstrates the delivery of community-based services  within an evidence-based person-centred                  approach.

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1  A compact and sign-posting approach

Anyone aiming to improve dementia care services in their area would not expect to find all they need on one sheet of A4 or a small webpage.  

  1. The aim of this page is to précis and signpost an international project which provides a new concept of dementia care - - within a day-centre concept. [However, it is not within a daycare-centre concept and personal care is not included within DMCs. ] Not stated anywhere - see here

  2. The intended readership  includes A) those who may be able to support the UK provision-planning arm of the project, and B) those who may become involved in the operation at client level.  Initially, the latter are likely to comprise health care professionals with experience of running and operating health-client services.         Once a start-date is on the calendar, other personnel and volunteers are recruited to supply therapeutic services such as music, singing, dance, flower-arranging, gardening, and art.  Some regular therapeutic suppliers will be given a much shorter version of these pages.   If you are in the A set, do keep a notebook handy attached to your reading-plough.  The project needs names and these pages need feedback.

  3. A busy readership  Since both groups are likely to comprise busy people, selected text is placed before them followed by its source for those who want further information. 
  4.  
  5. Numerous pages Inevitably,  There are numerous pages within ditto websites, many of which pages are pre-2016 comprising complex and lengthy text addressed to academics [note 1 here], county care planners, other stakeholders [examples in note 2 here], and XYZ.  

  6. Including links to half a dozen of the numerous pages in 1.7 even one of these, is not seen as being productive by this author.  However, quotations from some are included on this page and elsewhere.  

  7. Less numerous are quotations from recently produced pages dealing with what happens at Dementia Meeting Centres - DMCs.  Hence these pages.  Specific links come later.  Update 22 July - see foot of page here.


  8. Video presentations are available and take time to work through.  You may come across them but there are no links from here. 

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2  Background

  1. MEETINGDEM is a European JPND funded project aimed at implementing and evaluating the innovative Meeting Centers Support Programme (MCSP) for community dwelling people with dementia and their carers. The programme has been developed and evaluated in the Netherlands. . . .   source

  2. Meeting Centres have been successful in the Netherlands for over ten years. The approach is evidence-based and person-centred, focusing on helping both the individual [the person with dementia] and their family adapt to living with dementia. source  

  3. Meeting Centres are an innovative way of supporting people with mild to moderate dementia and their families through an evidence-based, person-centred approach. source

  4. Meeting Centres are designed to provide support to people living with dementia and their families/carers, and offer an enjoyable, flexible and adaptive programme. source

  5. Dementia care: One of the greatest challenges of family care is caregiving for someone suffering from dementia. As the illness progresses the caregiving burden grows, and the relationship with the care recipient becomes increasingly strained, often resulting in communication problems and conflicts. Social isolation follows. Eventually, many dementia carers need professional help from care services and rely on them to an increasing extent.    March 2015  source - p 6 here

  6. Projections forecast an increase in patient numbers to over 1 million by 2025 and more than 2 million by 2051. p 22 in the work quoted at 9.
Note 1 within Notes for the two pages here  applies to the use of Meeting Centres    as in 3, 5, & 7 above.

 3.2  DMCs make a feature of person-centred care


The key points of person-centred care are:

  • treating the person with dignity and respect
  • understanding their history, lifestyle, culture and preferences, including their likes, dislikes, hobbies and interests
  • looking at situations from the point of view of the person with dementia
  • providing opportunities for the person to have conversations and relationships with other people
  • ensuring the person has the chance to try new things or take part in activities they enjoy.
source includes links here



3.3  FAQ 1

A lot of this is being carried out at local day-care centres.  Why set up DMCs?  

Answer

You won't find the type of text in 3.2 within day-care centre websites.  compare  here  

Ah, but I have looked at How to meet other carers here and there's a list of what other providers provide.

The Carers Trust (formerly the Princess Royal Trust for Carers and Crossroads Care) runs services for carers across the country, including carers centres that offer support, information and advice. source


Text please.  

I can summarise from  Outcomes  on the  Meeting Centres Support Programme - a 2006 study page here  and take more from subsequent pages to be written.


Alzheimer  research here



 3  The present

3.1  The UK Meeting Centres are at Droitwich and Leominster.  Here is what happens:


4  Procedure relating to setting up a DMC


Text please.


5   The future  

  

A Project Evaluation Study is due in February 2017.  The money runs out in December 2016.

Interest in creating DMCs in Hereford and Ross-on-Wye has been registered.  However, the Hereford trail has gone cold.


More text needed from U of W.



3.1.1 Droitwich


Clients

• Recreational and social activities, such as reading the newspaper, painting, singing, preparing lunch and shopping and client-suggested activities  

• Training and therapy, such as reminiscence, dance, music and movement.


Family carers

• Informative meetings.

• Discussion groups.

• Assistance with practical, emotional and social issues.


For both clients with dementia and their carers

• Weekly consulting sessions.

• Social activities and excursions

source 




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     3.1.2 Leominster

  1. Make Do and Mend.  Bring in your mending and polishing

  2. Harp demo and chance to have a go with visiting musician

  3. Take-your-turn Ceildh / music by members

  4. Gentle exercise that promotes co-ordination and balance

  5. Another visit from a hedgehog for those who missed her

  6. Planning workshop

  7. Woodwind with John, John also plays quite a few instruments,  . . , he is offering woodwind sessions to all those interested

  8.  “The Games People Play” Old and new Games, played and discussed 

  9. Don’t forget that we can eat together any day; £3 per head can be pooled towards a shared meal.

  10. Remember that everyday can be tailored to suit you, the idea on the plan tells you generally what’s on, you can of course use the memory rooms, do your own thing, ie plant outside, cook, read, go shopping, go out for a coffee with other members etc  

 





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