An exploration of the UK unpaid carer's world

 

MEETINGDEM

 

Your opportunity

to participate in the future of UK DMCs


This page is also a public page and it  can be viewed without links and notes to Worcester University. here

  

It can be the basis of press-releases, personal letters to

 the  press and prospects including carers, volunteer

 and others with known experience of involvement 

in community work.


Although the text on the linked page is in reasonable order compared with the same text on this page, there was a considerable amount of sorting out to be done here. Even after, size varies.  This page is not for general readership.

 

The oublic version is here  No Return to Nav page


.

MEETINGDEM * includes UK Dementia 

Meeting Centres based on the success of 125 DMCs in Holland.


*   Meetingdem means an entire European project.


 


Return to Nav page here

Contents     

Sections of text are numbered to aid discussion and for email etc use.

  1. The author's strong belief 
  2. The main benefits
  3. Outstanding results
  4. Person-centred care 
  5. The here and now
  6. The future - your opportunity to participate
  7. Spread the word
  8. More information
  9. Represent an organisation? 
  10. Your stamina - Hot off the press - 18 July
  11. Note to U of W
  12. To decide re this info
  13. Alternative email text
Red text is not on the public page.

You may know already that dementia is not confined to those of this age.  



graphic to be flipped

 

 


You may know already that dementia is not confined to those of this age.  

 

1  The author's strong belief                           

This page results from the website author's strong belief in the continuity of  the too-few UK DMCs and the   creation of more.  My early-stage-dementive wife and I attend one on a regular basis and we are convinced that DMCs present the optimum way forward within national dementia services.  

Teresa is unable to express her view in those words.  However, she loves her once a week sessions even though there's an hour's journey there and back.  She also attends a daycare centre and is able to say "The staff spend the day talking at one end of the room while we sit at the other."

You can imagine what I think of that and can see why I want a clear future for the DMC project.  That doesn't imply that daycare centres are all as described.  However, what is clear is the ethos varies to the credit of DMCs.  

The main benefits are next on the agenda and prove the point.


2  The main benefits

The main benefits for people with dementia carees who visit the Dementia Meeting Centres are that they show fewer depressive symptoms and they have a higher self-esteem than carees in regular day-care.  Furthermore, admission to a nursing home is postponed.

The main benefits for their carers is that they experience more support, have an increased feeling of competence, and feel less burdened.  


3  Outstanding results

Dementia Meeting Centres have been successful in the Netherlands for over ten years. The approach is based on outstanding results and is person-centred, focusing on helping people with dementia, their carers, and their families adapt to living with dementia. 


FAQ - How are these results achieved?

Good question.


Let's suppose there are 100 couples involved.  Cared-for and carer.  They are split into two groups. Group A couples are studied and asked questions etc but attend normal daycare facilities.  Group B attend DMCs and are asked questions.  There's no need for specific group members to know about the other group.

Both groups are asked questions involving morale, mood, depressive symptoms, self-esteem, etc.  Notes are taken on how long it takes anyone to be admitted to a care home.

 

The DMC results in 2 The main benefits  speak for themselves.  Ditto the next section which is one of the most acclaimed benefits - person-centred care. 



 


I like this: 

. . . model of dementia support which placed the self of the person with dementia at the centre of a series of intersecting ‘circles of support’ bounded by the community in which they live. This model draws on approaches to dementia care which emphasises personhood and person-centredness.

5.4.1 here   It's not on the public page but think of variations.

 4   Person-centred care 


The key points of person-centred care are:

  • treating the person with dignity and respect
  • understanding their history, lifestyle, culture and preferences, including their likes, dislikes, hobbies and interests
  • looking at situations from the point of view of the person with dementia
  • providing opportunities for the person to have conversations and relationships with other people
  • ensuring the person has the chance to try new things or take part in activities they enjoy.
     source here

     Not for the public page

       Robot-centred care here & here



5   The here and now

The UK Meeting Centres are at Droitwich and Leominster.  Here is a selection of what happens:

The person with dementia can enjoy:
  • Recreational and social activities, such as reading the newspaper, painting, singing, preparing lunch and shopping and client-suggested activities  

  • Therapy, such as reminiscence, dance, music and movement

  • Make Do and Mend.  Bring in your mending and polishing


  • Harp demo and chance to have a go with a visiting musician


  • Take your turn Ceildh / music by members


  • Eating together any day; £3 per head can be pooled towards a shared meal.


The carer benefits include:    all black text on the public page

  • Participation in the activities just described which results in greater understanding of the wider benefits to oneself  and those with dementia

  • Informative meetings

  • Discussion groups including just-carer times of input and exchange and the resultant feelings of being valued, being able to relax with like-minded friends, and can't wait until the next session

  • Assistance with practical, emotional and social issues

  • Enjoying the carers-organisers relationship where carer needs, wants and views affecting them and their loved-ones have a clear influence on the nature and content of the caring and other aspects of what happens

  • Sharing the caring when, normally, it is a one-to-one activity
A lot of the text here is standard.  The red text above and below is mine as is a lot of the black text. See 6 and the red text is for emphasis. Not on the public page. See Preamble here.


For those with dementia and their carers

  • Weekly consulting sessions

  • New activities, excursions and new people to meet stemming from such sessions

  • Being with others with similar needs, wants and interests is important

  • Everyday can be tailored to suit either or both 



                 

 6   The future - your opportunity to participate

Anyone aiming to improve dementia care services in their area would not expect to find all they need on one sheet of A4 or a small webpage.


It is appropriate from the start to emphasise that there is plenty to be read and plenty of meetings.  This is the tip of the iceberg.  The public page adds "Say "Cool" and sign up." here  Comment please


The project needs community as well as professional support to keep the two DMCs going and to create more. 

The existing DMCs have their own support and if you live near Droitwich or Leominster they will be pleased to hear from you.  Comment please

 


 

 Comment please

The public-page-to-be shows a different graphic  without text built in.  Compare here and put your view forward.  Pic or no pic?  If pic - which?  Better one?


 The next stage is for you to receive more info here


Perhaps that's too soon.  

Do something practical if you have enough info, do it if you don't.


Become a volunteer.  There are no DMC volunteer stories.  Carers UK runs a relevant carer story. See  "Although challenging, I find caring, working and volunteering very rewardinghere.  Make contact for help in finding a dementia situation.


Become a Dementia Friend.

What is a Dementia Friend?  answer

Once in the family circle you might be tempted further.  Dementia Champion here

Get some promotion experience under your belt.  This will keep your enthusiasm going while the DMC project develops.  Stay in touch.

Becoming a Champion, however, is not a condition of communicating.  
 
If you are not already in an appropriate volunteer role, look around or make contact.

------------------------------------------

Explore the Dementia Action Alliance website 

How to set up a Local Dementia Action Alliance

For advice on setting up a Local Dementia Action Alliance download this toolkit: Getting Started


source  here   

When you engage with DAA, ask why must anyone need to have a position/role in an organisation.  

How does an unpaid carer, fraught with the need for support, connect to helpful info beyond the DAAwebsite?  

How does a less-fraught unpaid carer join the throng in order to inform it of caree/carer needs first hand? 

_________________________

If nothing here appeals, even if undecided about proceeding, text or call 07952 060 50 or email.


7   Spread the word


Please paste this into emails you send:


Have you heard about the new Dementia Meeting Centres?  Even if you or yours are not exposed to dementia , there's the chance of it occurring to you and/or someone you love one day.  Be prepared.  Start asking questions.

Your opportunity to participate in the future of UK Dementia Meeting Centres  is 

via  http://carerworld.yolasite.com/worcdemdmcppub.php   

Please  pass this email on to your contacts.

 


Having done that, there's one vital point.  Nothing happens until enough people ask.  Inform as many people as possible and ask them to ask for a new approach to local dementia care provision.  

Put in requests to your  GP, local councillors, Adult Wellbeing and other social services.  If you are an unpaid carer, when Occupational Therapists and District Nurses etc arrive to see your caree, talk about DMCs.  

Whenever two or three are gathered in the name of healthcare, maximise the opportunity.  It's all a matter of push while at the same time you are spreading the word.



8   More information

Leominster Dementia Meeting Centre Programme June 2016 here

                                                                                                 July 2016 here

UK DMCs + links [Lutterworth DMC not open yet]                     here



9  Represent an organisation?


Make contact and receive the correct set of pages


_______________________________ 


10  Your stamina

If you have read 95% or more of this page, you have shown the stamina needed for joining the project.

There is plenty of reading and plenty of clicking involved.  You'll need to be able to survive meetings as well.

Hot off the press - 18 July - is a Leominster DMC feedback session here.



With thanks for giving this page your attention,

and best wishes.


Alan F Harrison (Prof. ret'd)


Ross-on-Wye, Herefordshire    


Contact by email     07952 060 505



>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>


11   Note to U of W

11.1
The two main people, of course, are the person with ailment and the person who looks after him/her.  The names given come with a range of names.  The author hopes to simplify.  In the UK, it is often "carer" but still with a variety of names for "caree".  

11.2
You have just read "the person with dementia" etc.  He advises use of "caree" when appropriate.   more here   

11.3
The first para in 2 could be a good place to introduce caree.

11.4
Pluralise

At 5 it says     The person with dementia can enjoy:          

It's advised to say       Carees can enjoy:

Other changes can be made accordingly.


pagetop   for pasting    MEETINGDEM   Your opportunity to participate page here                      

                                Temporary return to Nav page here


12  To decide re this info:


The edited text in 2 comes from here.

The edited text in 3 comes from this source.

4 black text source here

4 pic from ADS page here


Acclimatising readers new to such projects may trump losing their interest.

 

--------------------------------------------------------------------------------------

13    Alternative email text


New Dementia Meeting Centres


Help promote a secure future for a new Dementia Meeting Centres [DMCs] project.  

They have been successful in the Netherlands for over ten years. The approach is based on outstanding results and is person-centred, focusing on helping people with dementia, their carers, and their families adapt to living with dementia. 

At present, there are only two DMCs and they are at Droitwich and Leominster.  Although work is in progress to create more, their continuity is not guaranteed.   

I hope you'll find time to read an outline of the benefits to people with dementia, their carers and to the wider community.  The "Your opportunity to participate" page is via 

http://carerworld.yolasite.com/worcdemdmcppub.php


Your salutation

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++


 


---------------------------------------------------------------------------------------

pagetop   for pasting    MEETINGDEM   Your opportunity to participate in UK DMCs page here                      

                                     Return to Nav page here