An exploration of the UK unpaid carer's world

Researcher's Booklet - People with Dementia   hidden page 

This page is about the questionnaires.

Researcher's Booklet - People with Dementia page 2 of 2 here.  It gives the caree's answers in absentia .

Return to     Notes etc to SE of U of W here

under construction

most links to be explored by the website author

Page 6

Pre-questions for quality of life measurement

Hendriks Droes Meiland questionnaire here

Hendriks Droes Meiland quality of life measurement  questionnaire here

Hendriks Droes Meiland Pre-questions for quality of life measurement  questionnaire here

Page 9

Conceptualization and Measurement of Quality of Life in Dementia: The Dementia Quality of Life Instrument

To develop a Quality of Life questionnaire rated by professionals that can be used for people with dementia in different stages of the disease, living in residential settings. more

Direct assessment of quality of life (QoL) of persons with dementia has largely been ignored due to logistical, conceptual and practical issues. This article presents a disease specific conceptual framework of QoL for dementia. more

A review of quality of life instruments used in dementia more

Quality of Life measures for dementia more


The Validity and Reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) Scale here

Health-related quality of life (HR-QOL) scales that measure patients’ perceptions of their global quality of life (rather than the number of symptoms they have) are particularly necessary in older people owing to the complex nature of their health status,  here


Page 21

Duke Social Support Inventory

The 35-item Duke Social Support Index (DSSI) measures multiple dimensions of social support and has been used extensively in cross-sectional and longitudinal studies of aging. more   

This is 1993.  Need to look for 2015    19 Qs used but cannot see 35 items yet.


Page 23


EQ-5D is primarily designed for self-completion by respondents and is ideally suited for use in postal surveys, in clinics and face-to-face interviews. It is cognitively simple, taking only a few minutes to complete. Instructions to respondents are included in the questionnaire. here


Page 25

Stigma Impact Scale: Neurological Impairment

Measuring perceived stigma in persons with progressive neurological disease

Alzheimer's dementia and Parkinson's disease here   Google

Another paper

Stigma of dementia in three European countries - the MeetingDem project  . . .  

Stigma around dementias’ (sic) exists due to the lack of public awareness and understanding of the diseasehere.

pagetop here    for pasting      Researcher's Booklet - People with Dementia here

                                 next -  Researcher's Booklet - People with Dementia page 2 of 2 here

                        Return to     Notes etc to SE of U of W here