An exploration of the UK unpaid carer's world

 

 It is hoped that these docs reduce phone and surgery time.

to gp mid 2015?


1 Thanks

2 Innovative professional care

3  Daily routine

4  Frustrated reaction

5  Help needed asap svp

6  Update - medication

7  In conclusion


1  Thanks

Thank you for seeing my wife and our daughter Rachel.  Further to the topic of a social worker assess­­ment and the matter of extra household help, I enquire about a possible innovative outcome.  I run a website devoted to carers. 

2 Innovative professional care

It involves Internet searches and I have not seen anything referring to paid carers in attendance with carer and caree.  I receive five hours respite per week.  However, I hope to enjoy more time with Teresa, not less.  If the extra help could include meal preparation for all three in the house at the time, my wife and I could enjoy a meal that I hadn’t prepared.  The paid carer could also advise me about meals which suit her throat problem.  She could even prepare enough meals for two or three days.  Cooking and the mess I create are all a nightmare.  It isn't envisage that one person could do everything since Teresa's needs are broad.  For example, help sorting out her personal papers etc privately would be useful.

3  Daily routine

A further aspect of the paid carer is that she might be able to help Teresa revise daily routine as set out in the six-page doc of Oct 2013.  Essentially, she spends the morning in bed reading her Bible and attending to her pills.  Then it’s bathroom until, sometimes, as late as 4pm.  The rest of the day is spent in her disability armchair before two hours bedroom prep.  The night involves four or five times 20 - 30 min WC visits.  She seldom sleeps before 0200.

4  Frustrated reaction

It is good that Teresa is not in need of a CPN.  Ditto re pills which will reduce the WC nightime routine.  Teresa’s sleep-level adds to her anxiety situation.  At times, it’s as if she decides that if she can’t sleep, I won’t either.  Occasionally, she indulges in bright-torch coverage of the ceiling supported by loud comment every 20 minutes until I react in anger.  My sleep level leaves me exhausted and hyper-reactive. during the day  We argue far more lately. Sometimes when I am concentrating on a document etc, she decides to sing loudly.  I can see that she needs to react in some way but needs help.

5  Help needed asap svp

Ideally the paid carer will have the skills to tackle such problems.  We look forward to the pills coming into effect.  However, I am in need of the cavalry not Calvary.  You’ll see from my records that I had twelve weeks of CBT via 2Gether a year ago.  I met Rosemary Carpenter a couple of times and wonder if she could be brought in and quickly.  She or someone like her could pop in while help from the other person is being arranged.

6  Update - medication

The latest pills seem to result in Teresa being much more unstable on her feet and new areas of pain are emerging.  

7 In conclusion

I appreciate that some of the above may fall within paid respite care.  This doc is about the whole and recent picture.  

It is recognised that things take time to arrange but my carer needs are in the present tense.