An exploration of the UK unpaid carer's world

Ross DMC DAA Application                             Home page here                   hidden page  

Update 7 Jan 2016  This is the Ross DMC application ready to send when it acquires infrastructure.  end update
 
1. The National Dementia Declaration lists seven outcomes that the DAA are seeking to achieve for people with dementia and their carers. How would you describe your organisation’s role in delivering better outcomes for people with dementia and their carers? 

Your response could include a national AND local role. Consider your organisation’s role in influencing and supporting the work of other organisations as well as the projects you deliver. (200 words)


RDMC is committed to supporting people with mild to moderate dementia and their carers through a highly personalised service to its participants -  carees, and their carers. The service is participant-determined, and underpinned by the success of 125 DMCs in Holland within more than ten years. Only two exist in England.  RDMC is established and is due to commence on 1 March 2007.

Carees (with carers) and independent carees in DMCs experience higher self-esteem, reduced symptoms of depression, enhanced mood and behaviour, and delay in admission to residential care.  Carers enjoy and benefit from sharing the caring when, normally, it is a one-to-one activity at home. Their morale is heightened by participating with their peers, their carees, and the RDMC trained volunteers, in the planned therapy given to their loved-ones, and other carees with dementia. The benefits extend to family involvement in reducing the caree dementia burden and its overlap onto carers.

RDMC influences and supports the work of existing DMCs by developing the therapy for independent carees, who, hitherto, rank as normal carees. The fact that they are self-carers dictates participation with carers as appropriate.  

RDMC works with Social Care and other organisations within local dementia care provision.

197 words

"If applicable, please indicate the existing local alliance you would like to join"  

It was not indicated where the choice is entered.

Herefordshire Dementia Action Alliance

Leominster Dementia Action Alliance

 

2. What are the challenges to delivering these outcomes from the perspective of your organisation? 

Your response could include your members’ understanding of dementia. A training body might say there is no agreement on appropriate core curricula. (150 words)


RDMC will improve local dementia daycare provision with a better option than conventional daycare centres where carers leave their carees in the morning and collect them in the afternoon, with little insight into what happened.  The huge difference is that carers and independent carees participate in the wider aspects of the care process - see 1, and not a one-size-fits-all response.  

RDMC members’ understanding of dementia is assessed before commencing and a "top-up" info session is given..  This enables informed choice re "the service is participant-determined" in 1.  "Group-tailor-made" is poles apart from one-size-fits-all.  

The challenges are met within core themes which include:


Responding to members' wants and needs

Physical and mental exercise, often combined

Reminiscence 

Songs and music 

Use of carer skills


The last item stems from Ross DMC not sacrificing resources on anything its members can benefit from making fothemselves.


146 words

why we need to work in partnership with the third sector organisations and carer networks locally.

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Not MHG-type meetings
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 At meetings there are only one or two items on the agenda, as well as a quick catch-up of what has been happening. This allows more space and time for people with dementia to talk. Members have given Mark and Ruth, the facilitators, a mandate to sort other business arrangements outside the meeting. This relationship is based on trust and is very pragmatic.  p 9 here

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However, a common principle is that carers do not speak on behalf of those with dementia, but on their own behalf. They must allow the people with dementia to speak for themselves  11 ibid

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application to DAA doc here

RDMC page from which some of the above text has been taken  is here

Innovations in dementia CIC here

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CREATING A
LOCAL DEMENTIA
ACTION ALLIANCE here   

National Dementia Declaration lists seven outcomes here.

Page 3, on the left lists many issues which RDMC is keen to address.

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TIDE looks useful here

Making an Impact Together ditto here  

DAA Dementia Action Alliance 
A network of organisations in England
that have a role in providing dementia
support. There is one national DAA and
many local ones.   p 3 here.

Important point - no support to individuals and none can join.

It is the type of support needed by RDMC.

GOVERNANCE FRAMEWORK here

To communicate to MHSG -

A Local Dementia Action Alliance is a collection of stakeholders brought together to
improve the lives of people with dementia in their area. They typically include a
range of organisations within a community for example bus companies, taxi firms,
police forces, fire and rescue services, high street retailers, local authorities,
charities, care providers and health trusts, faith groups, local associations or schools. 

here 8/18


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  1.  Significance. Getting involved gives a sense of purpose to people affected by a dementia and can sometimes be seen as therapeutic

  2.   Giving something. Affiliates are doing something positive with their diagnosis and helping others affected by a dementia 

  3.  Peer Support. Affiliates can teach others with their first-hand experience 

  4.  Socialising. People affected have the opportunity to meet others affected by a dementia and can share their experiences, ideas and concerns 

  5.  Keep fit. It keeps people affected physically and mentally active 

  6.  Opinion. Gives a voice to people affected by a dementia 

  7.  Responsibility. Affiliates can hold decision-makers to account 

  8.  Leave a legacy. People affected by a dementia can feel that the difficultexperience of living with a dementia has resulted in positive changes and improvements for others.
p3 here

 p 4 includes Dementia Engagement & Empowerment Project here




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a previous page in the DDA application process: 


Select your organisation type:  

What sectors does your organisation work in?


listed as ticks would not save

 care      charity communication      Community organisations       Education Sector
 
Faith Groups     health    Local DAA Members       Medical       Membership Organisations

Research Sector        social care   voluntary    vol sector

pagetop  D Application here