An exploration of the UK unpaid carer's world

                        MPs criticise NHS for sending elderly patients home in night

Dear Laura Donnelly                                                                                              29 Sept 2106

There are two health topics to discuss.  I give you a serious example of your article today.  Then there is dementia health-care provision.

You are probably knee-deep in such submissions, but here it is:

78 year-old woman ejected from A&E at 0200 - December  2014 here

  1. Dementia health-care provision
  2. Your recommended reading-route
  3. Some key text
  4. What I hope you will do

1  Dementia health-care provision

  1. This is the main reason for contacting you.  The new Dementia Meeting Centres - DMCs, as you know, have been on the cards since mid 2013 here

  2. You may not have caught up with the fact that well over £300,00 has been spent in England but only two DMCs have emerged and fewer than half a dozen are in pipeline.

  3. The main reason is the length of time it takes.  Inevitably, there are public meetings to muster interested parties from which, eventually, an Advisory Board is created. 

         Carer focused on caree with dementia

       Or is it a GP wondering what dementia is?

Anyone who follows the trail is presented with vast amounts of text and lengthy meetings at every milestone. Before a new-born DMC breaks its egg, it's been in the nest a year or longer. I present you a much shorter route. DIY. 

2  Your recommended reading-route beginneth

As you travel, bear in mind that the pages are written for those aiming to set up their DIY DMC in a few months.

  1. Skate around the - DIY Dementia Meeting Centre for your local community page here

  2. 1 i) gives you:

  3. Review and revision of UK present fragmented and inefficient dementia care is long overdue. A new way of tackling the problem is being tested.  Holland has been running Dementia Meeting Centres for twenty years and their success is proven.  A UK project was started in the middle of 2013 and a report is expected early in 2017. 

  4. Next stop - Dementia Meeting Centres - synopsis  - here  

  5. By now, if you missed the link on the Home page, you are likely to need the Navigation page here 

3   Some key text is as follows

  1. It is not a matter of insufficient finance. "The total grant for the project is for €1,119,819 -  £964,056 - with the UK-based research being funded by the Economic and Social Research Council,  and the University of Worcester receiving €375,000  - £322,839  for its work over the next three years." from 2103 here   source 2.15

  2. These amounts do not include three staff each at both DMCs on, say, 30 hours per week. ibid 2.17

  3. It is logical that present funding bodies will not fund anything else until at soonest, April  1.1.9 here

  4. Which means your pilot project will depend on other resources  ibid 1.1.11

  5. It's a three year project and over £300,000 has only produced two DMCs so far.  It's very important to get something locally which doesn't take over a year to produce.  If people locally can start their own DMCs, they will benefit society. . . (final words blown away)  (( A few lines above third picture here.  Inappropriate to number the paragraphs.))

  6. ---------------------------------------- 

  7. Meetings  -  Purpose - to obtain feedback to help planning. The emphasis is on carees and carers giving their views and incorporating them in immediate outcomes - the following week, or more long-term outcomes stated in programme docs.  Volunteers encouraged to attend and give their views after any meeting.  Leader skills and experience determine how those views are dealt with. source 2  

  8.  ------------------------------------------- 

  9. Activities not requiring special equipment and materials 

  10. Singing.  We don't need to rely on instruments, song sheets, technology etc, and can enjoy benefiting from the unaccompanied human voice.  Song sheets used when singing the old favorites defeat attempts to remember.   here  1.1.1

  11. Quizzes.  Five-item Q & A quizzes lead to "And what was the third question?"  Increase the number later. Carers are involved in separate meetings in which the matter of giving carees priority in answering, responding etc to such stimuli is discussed

  12.  ------------------------------------------- 
  13. Family-produced tests

Carers will discuss ways in which they can prolong the active mind of their carees beyond the walls of the DIY DMC.  

At first and at home, carers might incorporate a line or two from the list into everyday discussion.  If they want to keep a record of results, fine but it's not essential.  However, they help determine the level of decline. 


Introductory test

  1. Truth is stranger than
  2. Time and tide wait for
  3. The more things change, the more they
  4. Ring a ring of
  5. A bird in the hand is worth
  6. If at first you don’t succeed 
  7. Many hands make 
  8. Where did we live after Edinburgh?
  9. Speed bonny boat like
  10. Land of hope and
  11. What Britannia?
  12. Pop goes the
  13. Who is the Prime Minister?
  14. Animal, vegetable or
  15. Where's there's a will there's 
  16. What is Richard's elder son called?
  17. Half a pound of tuppeny rice,     [long pause]   half a pound of   

Carers will be able to discuss other ways of doing the same thing.  Focus on a shared interest and see what memories remain and which can be used as a building-blocks for memory retention, formulating speech, and other aspects of caree communication.

We are  musical.  I might say "I have a tune on the brain - Coming round the something.", - hoping to hear "mountains".

We had a motorhome until my wife's mobility deteriorated in 2014.  I avoid using "Do you remember X?"  If it's pouring, I might say "Reminds me of Lucerne", hoping for mention of when a lot of items were soaked in a deluge.

source but nothing further at 1.1 7 here    more

   Or is it a GP wondering what dementia is?

 Do GPs understand dementia?  here

3   What I hope you will do

  1. Write an article on the original DMCs

  2. Put the emphasis on DIY DMCs as a solution to the redtape

  3. Include something like  -  Find out more about Prof Harrison's DIY approach via

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