An exploration of the UK carer world

Holding-page for online papers and books

Exploring Factors that Influence Informal Caregiving in Medication Management for Home Hospice Patients here

source - unpaid informal carer acquisition of knowledge skills here

Music therapy for acquired brain injury (Review) here.

Update 19 March - all pages in this series are now here. Discontinue reading the pages.  

Spirituality and palliative care

Spirituality and palliative care via  Google                

In contrast, other books and papers I want to read on line are easy - example - see here.

I hopeto read these on line but there are difficulties:

2012: Nyatanga, B. Communicating with dying patients: a time to listen more than talk. BJCN. Vol. 17(8) August 2012  


2012: Nyatanga, B. In search of alternative ways of dying. Editorial.  IJPN Vol. 18(7). July 2012   

2012: Nyatanga, B. Inside the mind of a relative at the end of life. BJCN.  17(7). 28th June 2012 

BJCN - British Journal of Community Nursing here      Searched Questia but only Overviews are given  -  here.

IJPN - International Journal of Palliative Nursing here 

Occasionally, I strike lucky but with an unrelated item:

 2012: Nyatanga, B. Is there room at the Inn: palliative care for homeless people. BJCN. Vol 17(10),  October 2012  here

However, many are via paid-for searches as seen here.

2011: Nyatanga, B. In pursuit of cultural competence: service accessibility and acceptability. International Journal of palliative Nursing. 17(5) p212- 215 


Inequalities in end-of-life care provision are well documented and are a priority for organizations both nationally and internationally. It is well recognized that end-of-life care should be provided not just for patients with cancer, and that access to services should be based on need rather than on disease. Of even greater importance, particularly in multicultural societies, is the realization that such services should also be accessible to all, regardless of gender, culture, religion, ethnicity, etc. To achieve this, a degree of cultural sensitivity across care provision sectors is a prerequisite. Services must be acceptable as well as accessible to all, regardless of ethnic or cultural background.   source

see the Worcs Hive here

more Nyatanga here whence the above

Nyatanga B Why is it so difficult to die? Quay Books     not in Questia             google scholar shows citations only   

Top of that  list is

Brian Nyatanga 
International Journal of Palliative Nursing, Vol. 8, Iss. 5, 02 May 2002, pp 240 - 246

The frequently asked question, ‘Why do minority ethnic groups not access palliative care?’ needs closer analysis. This article sets out to revisit the context and principles of palliative care and discuss why palliative care services are not accessed equally by all cultural groups in western, particularly UK, society. The conceptual basis of culture, together with cultural diversity, will be discussed to foster greater understanding of multiculturalism with a view to offering recommendations for the provision of culturally sensitive palliative care. These recommendations will seek to be challenging but realistic, both for practitioners providing such care and for educationalists disseminating ‘knowledge’. I will highlight what I believe are the challenges of providing palliative care that is acceptable to minority ethnic groups based on personal experience and literature, and emphasize that these challenges should be seen as potential opportunities. It is hoped that this article will set a platform for honest and open discussion about the way forward in providing culturally sensitive palliative care for minority ethnic groups. I will pose a challenging call to all members of minority ethnic groups to adopt a more proactive approach to their own care by preparing themselves to be in an influential position in palliative care provision through academic and clinical endeavours.

paid-for source

Wider issues

Regulating Healthcare: A Prescription for Improvement?   Kieran Walshe

So, given that there seems to be a serious need for performance improvement, why is it difficult to achieve change and improvement in healthcare organizations? Few people would argue that those who work in healthcare organizations — clinical professionals, managers, ancillary workers and others — do not want to do the best they can for patients, or that they are lazy, incompetent and uncaring. In fact, it is much more likely that most people working in healthcare organizations are dedicated, hard-working and conscientious, and that they take great personal and professional pride in the services they provide (Berwick 1989). It is more likely that the problem lies in the highly complex, poorly understood healthcare system — the ways in which healthcare organizations are structured, healthcare processes are set up and managed, and healthcare services are financed and delivered. Improvement, therefore, means changing that system (Berwick 1996).

Berwick not included elsewhere unless Control F only searches the one page. 

p 5  source when logged into     search inside Google Books here

pagetop here   for pasting     Holding-page for online papers and books here