An exploration of the UK carer world

 

  

Introduction        ICE here  Find a page here Overview here  Updates here


1

This website stems from this carer's experience which started in 2000.  Probably most carers at the start get on with the role and take no action to obtain help and advice.  When it becomes more difficult, they begin to assess what is involved.  A typical reaction, it seems, is that provision and regulations are all a jungle.

2

One aspect of provision is regionalisation and each county is different.  The readers type "carer support" followed by their county, into Google etc to see what is available.

3

In my case, it was a matter of finding a seven-week, one afternoon a week course during February and March 2013.

There were three of us and all men.  When we introduced ourselves, the common denominator was that we had been carers for years without realising there was a name.  We had got on with the role and had reached the stage of seeking help.

4

This website aims to provide a greater understanding of the care role in the public mind.  It aims to provide a resource base for carers at whatever stage they are.  It aims to involve carers and anyone else who has anything to say, to contribute to its content.  Many pages use a paragraph etc numbering system, which aims to introduce page content and also tomake referencing easy within emails.

5

                   "If you look after a relative, friend or neighbour who because of illness, disability or the effects

                     of age, cannot manage at home without help then you are a carer..."


There will be many quotations and they will show where to see more.  


6

We leave this page from where we came in.  The "header graphic" aims to portray what may be going on in the carer's mind.  

On the left we see some carer qualities   - loving and caring, the need to be resilient and determined.

On the right there are less positive aspects to be considered: 

                      exasperation when things go wrong

                      the feeling of being invisible 

                           within the jungle of provision

7

The site aims to provide resources for carers which will enable for them to feel that all is not lost.


8

Enjoy the website.  It's a shop window which will be explained.  

 

Alan F Harrison (Prof)

Ross-on-Wye

Herefordshire

 

Site created 20 Sept 2013 and updates are here



                                                                    1  Welcome                                           

                                                                    2  The variety of carers

                                                                    3  The "header graphic"

                                                                    4  Why this website? 

                                                                    5  Enjoy the website

 

 Welcome   - to all within the carer world

                                       to carers 

                                       to those facing the prospect of being a carer

                                       to carees everywhere who hope to see the world through their carer's eyes

                                       to those who support carers

                            to anyone else who might arrive here                      

         

1a

Welcome to the world of the carer.  There are more female carers than male carers.  

 

1b

A little on the paid carer

The emphasis on unpaid  may prompt the question of  the difference as far as paid carers are concerned.  It's too early to follow that path and they receive attention later. They may act individually or work for a company.  Sometimes, they arrive via the NHS.  They may benefit from more media attention than unpaid carers who, comparatively, are invisible.  Our first paid carer link is here.  

 

1c

With that distinction out of the way we can proceed knowing that when this website refers to  carers,  they're the unpaid variety.

"If you look after a relative, friend or neighbour who because of illness, disability or the effects of age, cannot manage at home without help then you are a carer..."

There will be many quotations and after this page, they will show where to see more.  

It can be a dark world and let's work together to lighten it.

 

2  The variety of carers

 

2a  Young carers

"Young carers are children and young people who look after someone in their family who has an illness, a disability, or is affected by mental ill-health or substance misuse."

 

2b  Carers of working age 

Some juggle with caring and a job.  Others juggle.

 

2c  Retired carers

That is to say, carers who have retired from work.  

 

As seen in a minute, loving and caring go hand in hand for many, whatever type they are..

 

 

3  The "header graphic"

3a  

We'll progress to the top part of what you see above.

 

 Many carers have a lot going on in their world.

  1. They must see that the person they care for has all that she or he needs and round the clock
  2. They probably have other things going on such as looking after the rest of the family and/or going to work
  3. They have so many people to see in their role as carer
  4. They need to cope with wheelbarrows full of paperwork ...  
  5. And that's enough for now!

 3b

And now the words

 

There may be more caring than loving if a neighbour or friend is concerned but that needn't diminish the quality of care.  Many, if not most carers, look after a loved-one.

Their world is made up of a huge array of obstacles, systems and uncooperative people - not too many such people, though.  Some carers learn how how to be resilient through sheer determination.  

As we'll see, some are reduced to shaking their fists at the system.  Many feel invisible.  Nobody listens to them.  Nobody cares for the carers.

3c

not forgetting

 in a jungle

 

We'll see, however,  that many care about the carers.  It's finding them that's the problem for many carers.

Meanwhile, we soon start to look for whoever is lost in the blue patch of jungle.

4  Why this website? 

4a  The jungle

That word receives special treatment.  

If there is one single factor which causes problems (for carers I speak to) more than any other it's  fighting their way through the red tape tied around too many sections and components of the system.  Sooner or later, the tape feels as if it is choking.  No wonder they feel they have no voice.

On this website, we voice our frustrations - in song.

 

4b 

The site aims to provide resources for carers which will enable for them to feel that all is not lost.

 

4c

The final comment relating to the "Why this website?" question  is:

 

Creating pathways in the jungle doesn't keep the wild animals at bay.  Help me label paths which lead to food and water.

 

 

5  Enjoy the website

It's an undeveloped framework which will be explained.  


 

Alan F Harrison (Prof)

Ross-on-Wye

Herefordshire

 

Site created 17 Sept 2013 and updates are here

 


 

6 - PS

The group 2c above - retired carers is where I belong. They are the focus at present.

I hope to offer opportunities, carer experience but not carer expertise. My professional interests included  the use of food and drink in various contexts within society.  I contribute a page or two to a quarterly  food & wine magazine.  

 

 

7  PPS 

Life is a long-enduring RORO social experiment.  The inputs change from time to time, sometimes without our control.  It's what emerges, the changing outputs that matter.



Here's a roll-on - roll-off ferry.  All aboard!

 

 

pagetop here