An exploration of the UK unpaid carer's world

                                              Peter Wallis 1 B below

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It is not intended that carees view this page but, obviously, there is no control if if becomes a public page.

Carers, even carees, may view it as the result of team discussion.  The team will decide its future.

  1. The use of poetry
  2. A Cheltenham caree's poem
  3. On My Father's Dementia

1   The use of poetry

The use of poetry includes these aspects:

  1. Carees read and write poetry

  2. Carers read and write poetry

  3. They read and write poetry together

  4. Carers help their carees to write poetry

  5. Poets visit, read and discuss their poetry.  

  6. Poets visit, and with group permission, put members' words into poetry.  Project here

  7. Better still, help your DIY DMC participants put their own words into their own poems - with expert help as appropriate.

The point about poet visits is that they come first.  Establish interest. Embarking on writing poetry without the skills needed to help others is not recommended.  If you decide that reading poetry is enough, be prepared for "We want to write our poems.".

A      I'm in this home. They put me here. more

B       Take the elements of their ordinary life,  By Peter Wallis  more

C       More from Google to be added.

2  A Cheltenham caree's poem written by the carer?

May be........ 
When I wander, don't tell me to come and sit down. Wander with me. It may be because I am hungry, thirsty, need the toilet. Or maybe I just need to stretch my legs. 
When I call for my Mother (even though I'm ninety!) don't tell she has died. Reassure me, cuddle me, and ask me about her. It may be that I am looking for the security that my mother once gave me. 
When I shout out, please don't ask me to be quiet...or walk by. I am trying to tell you something, but have difficulty in telling you what. Be patient.   Try to find out.   I may be in pain. 
When I become agitated or appear angry, please don't reach for the drugs first. I am trying to tell you something. It may be too hot, too bright, and too noisy. Or maybe it's because I miss my loved ones. Try to find out first. 
When I don't eat my dinner or drink my tea, it may be because I've forgotten how to. Show me what to do, remind me. It may be that I just need to hold my knife and fork, I may know what to do then. 
When I push you away while you're trying to help me wash or get dressed, maybe it's because I have forgotten what you have said. Keep telling me what you are doing, over and over and over. Maybe others will think you're the one that needs the help! 
With all my thoughts and maybes, perhaps it will be you  who reaches my thoughts, understands my fears, and will make me feel safe. 
Maybe it will be you who I need to thank. If only I knew how. 

Norman McNamara    

source  p 14

One aim is to use quotes elsewhere. Advice to carers to be written.

 2.15 - Training meetings here  - to explore this page in depth  

3    On My Father's Dementia

                                                                                     source with other poems

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