An exploration of the UK unpaid carer's world

Dementia facts and resources                          Nav page here     Home page  here 

  1. A cross-section
  2. Dementia and Delirium
  3. Talks
  4. Brain food quiz

1 A cross-section 

  1. Historically, dementia was managed as a mental illness, however, in recent years there has been a shift towards its management as a long term condition. This presents an opportunity to diagnose and manage people in community settings, and to provide support to enable people and their carers to manage their own condition and maintain their independence.  source 7.1  

  2. Technically speaking there is no such disease as dementia. The term dementia actually refers to a group of symptoms that accompany certain diseases or conditions, such as Alzheimer's disease. ...  Alzheimer's disease is the most common type of dementia but there over 200 variants  here

  3. Dementia is not a disease in itself. Dementia is a word used to describe a group of symptoms that occur when brain cells stop working properly. here  here + source

  4. Dementia is a brain disorder that affects communication and performance of daily activities and Alzheimer’s disease is a form of dementia that specifically affects parts of the brain that control thought, memory and language.   source

  5. Add to the  200 variants a host of other forms of dementia, many of which you will read about.This page can only serve as an introduction and a limited menu.  Look on any item you read as hors d'oeuvre.  The aim is to whet your appetite.

  6. FAQs  here  

  7. Families  The 2004 study aimed to identify the specific problems faced by the families of older people with dementia and to explore the effectiveness of services in alleviating them. here p 18

  8. Statistics  According to the Alzheimer’s Society there are already more than 800,000 people with dementia in the UK and that number is set to double over the next 35 years. here

  9. Six in 10 older carers who provide 50 or more hours of (non-dementia-specific) care a week say their health is not good. see Relying on family and friends   here

  10. 68.8% of older carers say that being a carer has an adverse effect on their mental health. see Older carers here

  11. There are around seven million carers in the UK  – that is one in ten people. This is rising. Of all the UK’s carers, 11% care for people with dementia.   Up to 1.5 million people in the UK care for someone with mental ill health.  here   Taking the lowest result within shaky data and it's still an undesirable picture.

  12. Want to talk about dementia? here

  13. Dementia Revealed  What Primary Care Needs to Know - essential reading  here.

  14. Did you know?   Alzheimer's Disease is the most common form of dementia.   here

  15. Types of dementia here

  16. Dementia By Day here

  17. Alzheimer's Disease Fact Sheet here   USA but offers interesting reading

  18. The Dementia Umbrella here

  19. What happened to senile dementia?  here  Google     . . .

  20. . . . But . . . What is Senility?  here   Overview

  21. NHS Choices  here

  22. Coping with the Early Stages of Dementia - A Guide for people worried about Memory and Cognitive Problems or those recently diagnosed with Dementia. here

  23. A diagnosis of dementia can be frightening for those affected by the syndrome . .  here   9 here

  24. Where dementia is present, the degree of frailty usually corresponds to the degree of dementia -: 3 here

  25. Dementia variants - FTD here

  26. 10 things you need to know about dementia here

  27. Cognitive stimulation therapy for dementia here  

  28. Dementia: through their eyes - a useful resource although £ info out of date.  here

  29. Carers at the heart of 21st‑century families and communities here     Panel 4 at Carers who have no one to turn to here.   See foot of the page here.

  30. Dementia becomes Britain’s biggest killer here.


What's the Difference Between Dementia and Delirium? 



3.1  Pathways

Those who pursue the long route to creating a DMC are likely to be required to undertake a series of talks:

Informative "Understanding Dementia" meetings
  1. Intro to the dementia syndrome
  2. Different types of dementia
  3. Coping with behaviour problems - three sessions, one of which is a film 
  4. Medication
  5. Modifications in living situation     
  6. The grieving process     
  7. Legal and ethical aspects   

Those who pursue the shorter route by creating a DIY DMC can elect to receive talks of their choice.

3.2   Dementia Champions here


Brain food quiz: How much do you know? here

pagetop           Dementia Facts     here

                      Nav page here

                      Home page  here