An exploration of the UK unpaid carer's world

 As a result of our collaboration with FTD support groups from around the world at the International FTD Conference in Vancouver last year, we are excited to be gearing up for the first World FTD Awareness Week! The dates are October 4 - 11, 2015.

As October fast approaches, we want to encourage regional contact people and support group members alike to embrace World FTD Awareness Week and consider ways in which you can help demonstrate that we are a strong international community of families and professionals who are working together to advance care and treatments for FTD. Together, we have the chance to fight the isolation and challenges that people diagnosed with FTD and their caregivers experience.

There are many ways to participate in World FTD Awareness Week, and for this first year, events and activities of all kinds are expected from at least ten countries across the globe. Within the United States our sister organisation, the AFTD, will be marking the week with Food For Thought events—their goal being that communities and families in each of the 50 U.S. States will host these awareness/fundraising events. These events may offer inspiration for our own UK-based efforts. Combining fundraising and awareness efforts offers people a chance to learn more about FTD, and at the same time contribute to the momentum of work to fight this disease. (UK-based support group members are welcome to borrow from the materials that the AFTD have developed, which can be found here: http://www.theaftd.org/get-involved/host-an-event/aftds-food-for-thought. Specifically, AFTD has produced a toolkit for families that can be found here: http://www.theaftd.org/wp-content/uploads/2013/03/Food-for-Thought-Toolkit-20151.pdf).

FTDSG website details can be accessed at http://www.ucl.ac.uk/drc/ftdsupport and our just-giving site is easily accessible at https://www.justgiving.com/FTDSG/.

Please let us know [jill.walton@ucl.ac.uk] of events you host during World FTD Awareness Week . Send us your photographs and stories…however big or small, and we look forward to taking this initiative forward on a yearly basis. Please let Jill know if you would like to work on World FTD Awareness Week