An exploration of the UK unpaid carer's world

                                      Taking 100 to 1  bets on whether messages to local OTs will be answered


Dear Senior OT: a day in the life of a carer

 


 Dear Senior OT for XXXX (Not exactly dear to me as you will see)                                                  14 June 2016

 

  1. My attempts to make contact with any OT are heading in the direction of saga magnitude.  I have left messages since the end of May,  A DN was kind enough to phone over a week ago for info but those who received the outcome were not kind enough to reply.

  1. It is well known, at least within carer circles, that being a carer is a constant series of battles within, to them at least (again), what is laughingly called care provision.  I run a carerworld.info website which is full of the big question – “Why must it be like this?.

  1. Within wider circles, it is well known that NHS provision is in staffing difficulties (SDs).  The extent to which NHS units use SDs as an excuse to do nothing is a matter of research. 

  1. You are running a team which needs to take stock of dealing with messages.  Two years ago, I was faced with the same problem.  Luckily, I found Mrs L of Adult Wellbeing who helped with a wide range of problems, mostly within provision within 2 above. She has moved on.  However, carers shouldn’t need to use such resources as her with your team as it was then.
  2.  

  3. At c 0430 another session of dealing with my wife’s occasional incontinence occurred.  She is 100% dependent on wheelchairs but can negotiate bed transfer to commode immediately beside the bed.  Although FTD is there, she tries not to disturb me.  I woke to find her halfway, knickers drooping with the weight.  She said she was OK so I went off still half asleep looking for towels etc.  I came back to find urine trickling to the floor as she had sat on the commode and performed with knickers on.
  4.  

  5. One item needed is a lock/unlock-wheeled commode.  She was too tired to transfer to wheelchair in the direction of the bathroom.  I washed her in order to help safeguard against UTI.  Disability is expensive. £15k on a recent car.  Normally I buy items as waiting for NHS to wake up is impracticable.  £250 on a patient turner, £70 on bed-bars are also previous purchases. The car has knocked a hole in the bank balance so please talk commodes – this week.  There are other needs.
  6.  

  7. In case you don’t realise, this page comes to you via the OT unit at XXX Hospital [Another letter comes via a DN who phoned on spec to see my wife.]   How otherwise am I supposed to make contact?  A letter in the Gazette?  Midlands TV?  A one-man demo in the Market Place ensuring the Gazette is looking from its windows?
  8.  

  9. I have far too much to do as a carer to write this type of comm.  You might text me, phone  xxx or email me [inserted] on receipt of this page. Let’s waste no time talking about SDs.
  10.  

  11. The rest of this page is for Dr L – another saviour as with Mrs L.  I trust that I will hear from you soon so as not to involve Dr L who was often on Mrs L's many “To to do” lists. He has enough of them.
  12.  

  13. Re my wife’s occasional incontinence (6), I suggest no alteration to medication.  Stability there, no dire-rear.  Teresa’s weight is also satisfactorily stable – 52kg for the records.


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