An exploration of the UK unpaid carer's world

                  Life for carees and carers is complicated enough without needing to cope with NHS Dept X

The carer world is a series of mountains                 

Created 21 August 2015


The carer world is a series of mountains which, for many unpaid carers, the sides are too steep.  The mountains are  populated, often guarded  by, in the main, competent professionals.  Others, well, they think they are professional  providers.  A very low % = too many who are gatekeepers and/or display many varieties of incompetence.   

I am busy dealing with caring for my wife + emails re a replacement car  here needed for our return to the disability hotel here in early September.  WHEN DEALING WITH X, HOLIDAYS ARE TOP OF THE AGENDA.

The larger mountain above represents  NHS Department X which is unresponsive, intractable, and mystifying.  

The lack of a proper response is only one aspect of unpaid carers feeling exasperation and suffering from invisibility.

Some relevant extracts have been posted to this page.  Others will be collected and new aspects of the problems will ensue WITHIN THIS UNNECESSARY AND UNWARRANTED SAGA.

Some of the key issues are:

  1. Lack of a proper response in early and mid-July 
  2. No response until the intervention of a third party which I had asked to be involved
  3. X has communicated important information via the third-party - entirely unprofessional
  4. Lack of thought and, more precisely, lack of proper investigation resulting from 2.




It has taken a long time to gain a proper response and that in the wake of the possibility of a complaint. 


The  Such 'n such  consideration is indicative of lack of thought - a factor seemingly widespread within  X  If proper attention had been given to carer's initial requests the present predicament would not have occurred.


Carer has no interest in whitewashing internal complaint procedures.  He would prefer to spend that energy on, initially,  attacking the philosophy of  certain departments within the  X office not having public access.   


That is absolutely no excuse for hiding and not facing people.  I therefore call for, no, demand, a meeting. 



 C – I am sorry you feel that X  has taken a long time to respond. 

11b/1  Said as if it is untrue.  X has taken an exceedingly long time to respond.  All this started early in July. That has been a deliberate decision not to reply.  


The public mind is set against intractable organisations which act as X has.  The public mind knows that the only way to respond is to complain, demand, and name and shame.  The  somewhat buried threat of exposure as seen in my tongue-in-cheek newspaper article here remains to be seen.

Let's hit the headlines.  Let's not hit the negative pilliative NHS  headlines..

I can talk to the trustees.    

Caree is cared for by her husband who has also noticed . . . . . . . troubles with his wife."  Understatement.  As with                      this unnecessary and unwarranted  Dept X  saga, carer goes to great lengths to ensure caree receives the best possible medical      attention.  This website includes numerous descriptions of the failing NHS and other provision.    

pagetop here  for pasting              The carer world is a series of mountains - public page here



Unite/reunite with Amy and brother Jim Jency at the foot of the page here.