An exploration of the UK unpaid carer's world

Situation comment                                           hidden page - Item 3

Preamble

i)

At this stage, there is no structure to the page.  Topics are listed as I find them and as I remember them.  Thanks for the HCC contact info.  Won't send anything until we have prioritised.  Points you would like to send can be written as if they come from me.  

ii)

Feel free to send this page to others you trust.

iii)

You are referred to many pages and more than a few are out of date.  No time to update.

iv)

An initial comment on sending material forward.  There's enough of it so far to justify a blunderbuss title.  Some. at least, of the suggestions strike the target.   However, the scale of H ignoring so many suggestions etc is clear evidence of prejudice.  Our task is to put forward a series of bulletpoints with a concise conclusion.  I'll do the donkey work.  

v)

How can we acquire evidence for the H contract being extended "by negotiated decision rather tha advertised"?


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1  Website

2  Links of no use

3  Private page

4  My help given

5  My report on CRD

6a  Songs and website help

6b  Surgeries

6c  Parent Carer Voice

7  Carer Forum - 1

8  Carer Forum - 2

9  Website out of date

10  Anti-carerworld site

11 I.T.

12  Emails


Other aspects

A   Songs and Music therapy

B  Carers and computer use

C  The FoD website
D  Remembrance

E  Seminars

1  Website

When the H website was down, notes were sent but ignored  - here.  It was down from mid-Sept to mid-Jan.


2  Links of no use

H website Home page carried updates from 15 January to 4 February which are here .   The page showed links which didn't work plus other irrelevant info..  The site was worked on by H to rectify the errors but no contact with me was made.


3  Private page

A private page for H  is here.  Note 7 refers to 2 above.


4  My help given

H was caught out (no website editing possible) so I supplemented the entirely inadequate info on the H website here

Before that there was a Carer rights Home page here


5  My report on CRD

After the event. I produced a lot of material - all ignored.  

Summary covering  proceedings to half-time here.  My comment is here.  


6a  Songs and website help

i)

H included a singer who led the audience in one song.  That inspired me to recyle songs for such events and local groups etc.  H allowed me to use them twice only.  See earlier negotiation at 1a here.  

ii)

On 4 Oct, I sent her an email referring to a staff meeting and could I attend with song sheets.  She replied that she didn't understand what I had said.

iii)

I sent details of the songs to all staff by email on 10 Oct.  Reply - meeting can't accommodate me.    

iv)

On 17 Oct, I sent more song comment as seen at 8 and 9  here.  There's important comment about carer IT awareness and websites.  H is afraid of local groups creating websites.  I showed how H can take control.  All ignored.

From 9 on that page is a link to an H song here.  As you see, it is light-hearted.  However, it calls for a response to making a DVD.  Ignored as all points therein have been ignored.


v)

Recycled songs Home page here.



6b  Surgeries

At the CRD, GP prizes were awarded.  HL is the coordinator who announced the latest figures re surgeries signing up the H Charter.  I asked if the info was to be recorded in the mins.  It wasn't.  

I wrote a page querying the numbers here.  Ignored.

6c  Parent Carer Voice

Parent Carer Voice event, 6 December 2013  here  Wrote notes useful to mins sec.  Ignored


7  Carer Forum - 1

Ignored note on HCS Carer Forum - 17th July 2014 here


8  Carer Forum - 2

Minutes of a local forum in Ross - May 22 .   I have seen them but can't find them.   They ignore a paper I had distributed and had commented on.  Paper to follow.    Spoke to the mins sec who has ignored my request for the mins to include my paper.


9  Website out of date

The H website is often out of date - the info may change but today it is current re May here.  


10  Anti-carerworld site
H Director JB and one local worker spent two hours (Nov)  in my local library trying to persuade me to eliminate this website.  The meeting was recorded.  Do you know anyone who could type from the recording?

One notable interaction 

JB spoke for a minute or two on a topic and conclude by asking me to feed back my understanding of what she had said.  I replied that I had understood all that she had said.

11  I.T.  

Lip service  was paid to my request to give a session as seen here.  No. 5 here ignored.

12  Emails
Looking through previous emails, my some of my requests are turned down fairly cordially while others are emphatic.  



End of comment for the time being.  There's plenty more.

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Other aspects


A
Songs and Music therapy starts here.  

B
Carers and computer use here     Includes a possible starting point here.    Have fun with the Emperor here

C
The FoD website

I prepared for our meeting here.  The FoD site was found to be difficult to navigate.  I'd be happy to help.

D
Remembrance

Perhaps some of the children in your care could do something on these lines.   On the page - WW2 is mentioned.  It could be revised to read WW1.

E   Seminars

Worcester University seminars  

      draft pages: 

      Spirituality and palliative care here  

      Making sense of resilience in palliative care  here



pagetop here  for pasting   Situation comment page here