Dear S P
1
Louisa Rawstrom - LR - phoned yesterday. Carer Review Team
within Adult Wellbeing. The call was disturbing, to say the
least. It looks as if all XR services to this
house will end soon. I will be re-assessed with the strong
possibility of a different type of XR service ensuing. There is
to be a definite and drastic reduction in the extent of service
after the assessment.
2
However, it was all a shock and I may not be describing things properly. LR is looking at the possibility of a meeting at the Ryefield Centre on 7 Oct afternoon. I need a lot of answers in detail if you please.
3
There is a definition problem within present XR services. The 1000 - 1100 sessions of housekeeping aimed at making my life easier may have been said by LR to be for Teresa's bathroom etc events.
4
As you may have realised. Rachel and I went through your 18
page doc with a toothcomb in prep for the meeting. You gave no
hint that that there would another party involved in yet another
assessment which would turn yours on its head. Perhaps I have
misinterpreted detail. You certainly didn't mention any Carer Review Team within
Adult Wellbeing.
Perhaps things are changing so rapidly,
you can't keep up with the situation. Left hand and right hand
probs.
5
LR said the new XR offering will be termed Carer Wellbeing Service. Can you confirm that title? Define?
Replacement care is designed to replace the care that you, as a carer, would normally be giving the person you care for. It may be needed so you can look after your own health and wellbeing, and to take a break from caring. For example, it may be that regular replacement overnight care is needed so you can catch up on your own sleep.
In certain situations, respite (temporary) care may be provided by your local authority after your carer's assessment or after the person you care for has had an assessment. You can use the directory of local carers' services to find your nearest local carers' centre or respite service. Your local authority or local carers' centre can give you information about local support.
or via
http://www.nhs.uk/Conditions/social-care-and-support-guide/Pages/breaks-for-carers-respite-care.aspx
6
From the Adult Wellbeing assessment of my wife two weeks ago, it looks as if my needs will be catered for by what she ends up with. Comment?
7
From LR, I gather that all the time taken to prepare for and undergo within 6 has about five weeks to run before A starts. Comment?
8
My stress level is at an all-time ceiling. Here is just one
component:
I have enough issues
to deal with. The carer world is a series of mountains -
public page here
or via
http://carerworld.yolasite.com/2gmountainspub.php
was created as a threat to name and shame
the staff supposed to be dealing with my wife's dementia. It
worked and a meeting was held yesterday attended by our elder
daughter and four, yes four of the Dept X senior staff. It
focused 50-50 on my wife and I with emphasis on my crucial role
as carer. If I am not healthy etc, who will look after my wife?
9
Let it be known that part way through the
LR call, my stress led me to making comment about how carers
like me interpret what she wants to talk about as officialdom
carrying out the cuts in services. I restrained from saying
that a letter would make more sense. It would save a lot of
time and, in the end, the participation stress within an
inevitable and easily predictable consequence. Carers really
won't have much influence on subsequent provision.
10
Which leads me to conclude with thanks to you and JL before you, for the kind consideration and provision enjoyed
thus far on my journey to next to nothing in the immediate
future.