An exploration of the UK unpaid carer's world

                                                                                    Graphic is provisional

Occupational therapists  

Preamble

This letter results from three weeks of leaving unanswered messages via the Area OT line.

It was delivered by hand to the OT office at  Ross Community Hospital.  A DN happened to call at the house so she took a copy as well.

An OT phoned on the afternoon of 15 June.  She had been given no info whatsoever - just phone and find out about a problem.  Look out Senior OT for Ross.  I will be calling in at Belmont.

[text thus] is additional.  Obviously, links have been added.

Another OT phoned the next day to arrange a visit on 24 June.  My concern includes the thousands of carers who just put up with extremes of inadequate professionalism.  

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Dear Senior OT for Ross  (Not exactly dear to me as you will see)                   14 June 2016

 

  1. My attempts to make contact with any OT are heading in the direction of saga magnitude.  I have left messages since the end of May,  A DN was kind enough to phone over a week ago for info but those who received the outcome were not kind enough to reply.

 

  1. It is well known, at least within carer circles, that being a carer is a constant series of battles within, to them at least (again), what is laughingly called care provision.  I run a carerworld.info website which is full of the big question – “Why must it be like this?.

 

  1. Within wider circles, it is well known that NHS provision is in staffing difficulties (SDs).  The extent to which NHS units use SDs as an excuse to do nothing is a matter of research. 


  1. You are running a team which needs to take stock of dealing with messages.  Two years ago, I was faced with the same problem.  Luckily, I found Mrs L of Adult Wellbeing who helped with a wide range of problems, mostly within provision - see 2 above. She has moved on.  However, carers shouldn’t need to rely on such resources when dealing with your team as it was then.  Update 20 June - I was amazed and grateful that she had followed up this page. But why is it necessary to waste the time of other professionals within overall care provision?
  2.  

  3. At c 0430 another session of dealing with my wife’s increasing incontinence occurred.  She is 100% dependent on wheelchairs [also here] but can negotiate bed transfer to commode immediately beside the bed.  Although FTD is there, she tries not to disturb me.  I woke to find her halfway, knickers drooping with the weight.  She said she was OK so I went off still half asleep looking for towels etc.  I came back to find urine trickling to the floor as she had sat on the commode and performed with knickers on.
  4.  

  5. One item needed is a lock/unlock-wheeled commode.  She was too tired to transfer to wheelchair in the direction of the bathroom.  I washed her in order to help safeguard against UTI.  Disability is expensive. £15k on a recent car.  Normally I buy items as waiting for NHS to wake up {more] is impracticable.  £250 on a patient turner, £70 on bed-bars are also previous purchases. The car has knocked a hole in the bank balance so please talk commodes – this week.  There are other needs.
  6.  

  7. In case you don’t realise, this page comes to you via the unit at Ross Hospital [and a DN who called at the house on spec ].  How otherwise am I supposed to make contact?  A letter in the Gazette?  Midlands TV?  A one-man demo near the Market House ensuring the Gazette is looking from its windows?
  8.  

  9. I have far too much to do as a carer to write this type of comm. I am also heavily engaged in the future of the new Dementia Meeting Centres [[ here  ]] via carerworld.info Update page.  You might text me or phone 07952 060 505 on receipt of this page. Let’s waste no time talking about SDs.
  10.  

  11. The rest of this page is for Dr L – another saviour as with Mrs L.  I trust that I will hear from you soon so as not to involve Dr L who was often on Mrs L’s many “To to do” lists. He has enough of them.

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