The carer world is a series of mountains - No 1 here
2g Letter to caree 16 03 15 hidden page Home page here
Preamble
The website author has intercepted all his wife's correspondence since November 2014 when she went into hospital.
This letter came in a plain envelope with no indication of source outside. The address etc was hand-written. It could have come from a friend.
Imagine the following text under the date.
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Dear Mrs
It is 2g policy to send all such letters to the caree irrespective of ability to comprehend technical and medical terms used within them. This is probably of no consequence as anyone in your condition, after a lot of initial upset and confusion, will have forgotten about it within a day or two. We say probably as we do not know if there is any residue hidden deep in the mind.
Furthermore, we are not interested in any effect this has on the caree or carer.
It is possibly of no consequence as any carer with sense will have ensured that all caree correspondence will have been opened before the caree reads it.
Although I say that I will refer you to a CDN and a DA who can signpost and offer you and your husband support, this will amount to nothing until late August. By then, your husband will have been in touch with 2g to find out what is going on.
Being in the mind business, as you may have noted, claire-voyancy is second nature We forecast that in early July, your husband will contact us. We propose to ignore any requests he makes until we suspect the high probability of a complaint being made.
It is not proposed to contact him with details and we will use a third party to do this.
We think that this will be unsatisfactory to him and, if so, will send him an unsigned email. This will be full of suppositions and other errors.
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Addressed to Dr C at A.S.S. - Ross
He was involved until June 2014.
Address everything to Dr L and copy to Prof H – not caree See A - Correspondence here
16 March 3015
Dear Dr C Dr L dealt with this
Caree info
This lovely 78 year old lady was assessed at her home
by Memory Assessment Nurse MH with her
husband present. This memory assessment along with a CT scan and biood results has been discussed with our consultant
Presenting Situation
Caree has experienced gradual onset of memory impairment over the past 12 months. Feels this has got worse since an admission to hospital due to a damaged hip. It is particularly short term memory impairment; long term memory is patchy but generally intact. Carees experiences word finding difficulties at times and sometimes uses the wrong words. She feels this is something that worsens when talking to new people. Caree is cared for by her husband who has also noticed memory troubles with his wife. Caree has poor mobility and uses a wheelchair to mobilise. She has a carer that attends once daily to help her with her morning ADLs.
ACE-111 Results
Overall score 56/100
Attention 11/18
Memory9/26,
Fluency 6/14,
Language 21/26,
Visuospatial 9/16
BADLS 24/60
Summary
Diagnostic Review with Dr E and MH
Caree has experienced a several year history of progressive cognitive impairment now with global impairments (ACE-3) 56/100. Clinical history from GP includes a change in character becoming reclusive and with psycho-motor retardation attributed to depression. The above is occurring on a back ground of ischaemic heart disease. Ct scan has shown predominant fronto-temporal changes.
Caree is clearly suffering from a moderately severe dementia, the suspicion is that this is a fronto-temporal dementia; further neuropsychology testing would shed more light on this possibility. Dr E would be comfortable with caree trial an ACI medication but she would need an ECG and he would stop these swiftly if there were any worsening of her symptoms as patients with FTD sometimes do poorly with ACIs.
I have been to visit caree and her husband to deliver a diagnosis of fronto-temporal dementia. I have explained that as a service we could offer further specialist assessment to determine this in more detail however they are happy to leave the diagnosis as it is currently. I have discussed the possibility of caree starting an ACI medication if her ECG allows and it is something they are going to have a think about. I have left it that they will contact the memory clinic when they have made a decision. If they do decided to commence with this I will arrange an ECG and monitor the initiation of this medication for the first 28 days.
In the meanwhile I will refer Caree to a Community Dementia Nurse and a Dementia Adviser who can signpost and offer them support and advice* . I have left Carees with an information pack on Dementia.
Plan
-Caree to let me know if she wishes to trail sic an ACI medication
-Referral made to Community Dementia Nurse
-Referral made to dementia Adviser
Yours sincerely,
AD
Memory Assessment Nurse
Cc: Mr sic and Mrs Caree
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Comment
1
I have left carees with an information pack on Dementia. i.e. I have left Mrs Smiths with ...
Carees experiences word finding difficulties at times i.e. Mrs Smiths experiences .....
AD experiences lack of typo-finding before sending letters.
2
-Caree to let me know if she wishes to trail sic an ACI medication
I will refer caree to a Community Dementia Nurse and a Dementia Adviser
Referral made to dementia Adviser
3
This memory assessment along with a CT scan
a back ground of ischaemic heart disease. Ct scan has shown predominant
4
4a
It can be argued that such errors (see also 9) are of no consequence. Once in a blue moon, readers email me pointing out typos and failed links. I am not claiming to be perfect. I am not a public servant. 2g must improve here
4b
The tests - Notes to 2g - Update 11 July 2015 here
4c
The matter of my documents [ C4 here ] is unresolved.
5
Regarding the * next to " ... offer them support and advice. ", 2g is requested to list dates, format and details of the said support and advice.
6
" they are happy to leave the diagnosis as it is currently."
Soon after the letter arrived carer contacted Dr L re the medication. As a result, " Donepezil 5mg tablets - One To Be Taken
At Night to help control onset dementia" appears on the left here.
7
2g readers can also read there on the right " Mrs H has been assessed by Hereford Memory Service (HMS) and was confirmed in April 2015 as having onset dementia. However, in every-day interaction, this is not all that apparent. HMS has been very uncooperative as at 16 August 2015. " Update 20 9 2015 - text removed - HMS has been very uncooperative as at 16 August 2015.
Carer is happy that " in every-day interaction, this is not all that apparent." Donepezil is working. 2g on a good day . However, carer is unhappy that this is a hidden page.
8
" Caree is cared for by her husband who has also noticed memory troubles with his wife." Understatement. As with this unnecessary and unwarranted 2g saga, carer goes to great lengths to ensure caree receives the best possible medical attention. This website includes numerous descriptions of the failing NHS and other provision.
9
"She has a carer that who attends once daily to help her with her morning ADLs..".
The daily amount of medication you have already seen means that a normally slow person is even slower. It is rare for the paid carer to be involved with ADLs. She works from 0900 to 1000 and carer finishes long after her departure. Paid carer is engaged for and is good at the washing-up type of tasks.. Update 20 9 2015 paid carer works weekdays from 1000 to 1100
pagetop here for pasting 2g Letter to caree 16 03 15 here
Home page here.
The Preamble originally included - In time, the quality of the text will be improved.
This is the first attempt.
page 1
